In a seminal move coinciding with Rare Disease Day, Emmes Endpoints Solutions has taken a significant step forward in the realm of rare disease research.
Duchenne Muscular Dystrophy (DMD) is a genetic disorder that primarily affects males, caused by a mutation in the gene that encodes for a protein called dystrophin. This protein is crucial for the normal functioning of muscles, and its absence leads to...
A partnership was announced this week (April 11) between non-profit CureDuchenne and health technology company, PicnicHealth that will provide as much data as possible to researchers while helping patients navigate complex medical systems.
A clinic dedicated to providing care and services to undeserved and uninsured individuals with Duchenne and Becker muscular dystrophy opened its doors on Friday (March 3).
