The contract research origination (CRO) recently launched a scholarship which will be rewarded to an individual from the rare disease advocacy community to attend the Sanford/PPALS Patient Advocacy Certification Training (PACT) program. In its fourth year, the training program is designed to enhance the professional development of life science specialists and patient advocacy organization leaders.
Premier Research also recently created a new patient and stakeholder engagement (PASE) capability, which will be led by Juliet Moritz, who told us the company launched PASE as the way the industry performs research has shifted.
“For years we have heard the terms ‘patient engagement’ and ‘patient-centricity’ bandied about. To date, however, no one has been able to put a finger on what that means,” she told us.
Moritz asked rhetorically if these terms mean reducing the patient’s burden of participating in a trial? Attaining patient input during protocol design? Using wearables to collect data or using smartphone apps to interact with patients? Her answer is all – and more.
“We started with placing the therapeutic outcome in the hands of the patient and then identifying each previous step that got us to that point. That meant examining each step of the clinical development process and mapping the stakeholders for each step,” she explained.
“Next we began considering the process from the point of view of those stakeholders so we could see how Premier Research could positively shape each step to make it more inclusive of patients.”
Under PASE, Moritz said programs will acknowledge patients throughout the development process.